Anyone with a good local pharmacy, help!

I called our awesome local pharmacy in Astoria to see if they had any on the shelves, as they’ve been keeping me in plenty of my trusted real abuterol (with CFCs, but it works better), but no luck on the Cylert.

If you have a good local pharmacy that you think might stock Cylert (aka Pemoline), or are in another country which hasn’t banned it, please call to see if there is any available. If there is, contact Len directly through his twitter account or comment here and I’ll get in touch with him.

The phonecall to my local pharmacy took 5 min. Please take a few minutes if you can, it could save a life!
clipped from justinkownacki.blogspot.com
Len Edgerly twittered today:
My mother, 78, has MS & is about to run out of Cylert aka Pemoline, a drug taken off market by FDA in 2006. She depends on this to function… We found a forgotten supply of Cylert in Casper, Wyoming last year and have scoured the world looking for more. Anyone with pharmacy links? ( Cylert was taken off market because it caused liver problems in some children. Not a concern for Mom. She also uses bee stings to fight MS.)
I don’t know anyone who works in the pharmacy world — but I do know a lot of people. (So does Len — he’d just Twittered to Robert Scoble moments earlier.) And so do the people I know. Surely, somehow, someone we know must be able to help Len Edgerly out.
Mom jokes she’ll get a tatoo that says “I’m here because of Twitter” if my effort to find FDA-banned Cylert aka Pemoline for her MS succeeds
Now wouldn’t THAT be a positive social media story?
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09/13
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  1. Thanks very much for the help, Eric! A lot of solid leads came in today that will help my mother find a new supply of this medication which has been so helpful to her in dealing with MS. Her neurologist in Boston is a member of the Harvard Medical School faculty, and he is very aware of the liver issues, so he has been checking Mom’s liver every month, finding no problems, so he is continuing to prescribe pemoline, if we can only find some more. BTW, I’ve loaded Clipmarks and have it on my list of things to learn, to become more familiar with its v-appealing capabilities!

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